They started work on my wetshower and ramp yesterday so all things going to plan everything should be finished by Friday. I've got to say a huge thank you to Enable New Zealand for funding these for me and for everyone else out there who requires this type of assistance.
I'm good, nothing changed since my last post. Just wanted to brag about my new shower and ramp.
Bill
Tuesday, February 26, 2008
Monday, February 18, 2008
Just a quick update:
I've been good.
Getting noticably weaker in the other leg and in my arms. Trying alternative treatments (giving all sorts a go). Getting a lazy-boy in soon from the MND Association (Thank You). Have been approved funding for a wet-shower and ramp and really looking forward to that shower, because getting in and out of the bath is almost impossible now without help. To top things off, I've had what I think is gout in my "GOOD" foot.
On the upside, my eating and swallowing is really good so all in all I haven't had a bad month.
Thanks for all the messages my friends, will update from time to time.
Getting noticably weaker in the other leg and in my arms. Trying alternative treatments (giving all sorts a go). Getting a lazy-boy in soon from the MND Association (Thank You). Have been approved funding for a wet-shower and ramp and really looking forward to that shower, because getting in and out of the bath is almost impossible now without help. To top things off, I've had what I think is gout in my "GOOD" foot.
On the upside, my eating and swallowing is really good so all in all I haven't had a bad month.
Thanks for all the messages my friends, will update from time to time.
Friday, February 1, 2008
Educatiing myself!
My goal on my blog is twofold. I want to educate myself on MND/ALS and use it as a tool to help my friends and family cope with whatever lies ahead for me.
I am not the most talkative of people, I don't find it easy talking about MND to people, even to family. In truth this is because I don't want to know! I don't want to know that I'm going to have to rely on strangers for things, I don't want to know that some day I will be unable to walk without aid or not walk at all. BUT....I 've got to GET OVER IT and live life to the fullest.
(I would take the time now to explain that my wife is typing this for me, at least for now until I get familiar with the keyboard enough to type myself - she will also make what I want to say a wee bit more understandable.......written and oral language has never been my strong point).
Since I was diagnosed, my wife has been on the internet researching MND. She finds sites, she's bookmarked them all (whatever that means) and asks me if I want to read any.......to date the answer has been NO....actually its been HELL NO!
Today is the first day of my EDUCATION, I realize that I need to help myself......not sure how often I'm going to post messages, but hei aha I'm sure my wife will nudge me with the ol elbow to update this page.....
I turn 50 this year, I would have liked to be healthy and happy when I reached that milestone but I suppose one out of two isn't bad....
If you visit my page I don't want you to feel sorry for me, I think I've been doing enough of that for myself....thats over!
Kia kaha.....Be Strong that will be my moto from now on!
I am not the most talkative of people, I don't find it easy talking about MND to people, even to family. In truth this is because I don't want to know! I don't want to know that I'm going to have to rely on strangers for things, I don't want to know that some day I will be unable to walk without aid or not walk at all. BUT....I 've got to GET OVER IT and live life to the fullest.
(I would take the time now to explain that my wife is typing this for me, at least for now until I get familiar with the keyboard enough to type myself - she will also make what I want to say a wee bit more understandable.......written and oral language has never been my strong point).
Since I was diagnosed, my wife has been on the internet researching MND. She finds sites, she's bookmarked them all (whatever that means) and asks me if I want to read any.......to date the answer has been NO....actually its been HELL NO!
Today is the first day of my EDUCATION, I realize that I need to help myself......not sure how often I'm going to post messages, but hei aha I'm sure my wife will nudge me with the ol elbow to update this page.....
I turn 50 this year, I would have liked to be healthy and happy when I reached that milestone but I suppose one out of two isn't bad....
If you visit my page I don't want you to feel sorry for me, I think I've been doing enough of that for myself....thats over!
Kia kaha.....Be Strong that will be my moto from now on!
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