My goal on my blog is twofold. I want to educate myself on MND/ALS and use it as a tool to help my friends and family cope with whatever lies ahead for me.
I am not the most talkative of people, I don't find it easy talking about MND to people, even to family. In truth this is because I don't want to know! I don't want to know that I'm going to have to rely on strangers for things, I don't want to know that some day I will be unable to walk without aid or not walk at all. BUT....I 've got to GET OVER IT and live life to the fullest.
(I would take the time now to explain that my wife is typing this for me, at least for now until I get familiar with the keyboard enough to type myself - she will also make what I want to say a wee bit more understandable.......written and oral language has never been my strong point).
Since I was diagnosed, my wife has been on the internet researching MND. She finds sites, she's bookmarked them all (whatever that means) and asks me if I want to read any.......to date the answer has been NO....actually its been HELL NO!
Today is the first day of my EDUCATION, I realize that I need to help myself......not sure how often I'm going to post messages, but hei aha I'm sure my wife will nudge me with the ol elbow to update this page.....
I turn 50 this year, I would have liked to be healthy and happy when I reached that milestone but I suppose one out of two isn't bad....
If you visit my page I don't want you to feel sorry for me, I think I've been doing enough of that for myself....thats over!
Kia kaha.....Be Strong that will be my moto from now on!
3 comments:
Wot an inspiration u r,sitting here this morning reading Erin's bebo page and being led to this awesome blog about u and by u.
U r doin great,to b able to post up a blog like that is just plain awesome.I look forward to Erin giving u a "nudge" every now and then so u can continu to show us all how u brave u r.
Kia kaha Bill you!ll be still strong an healthy when we have your 50th Looking forward to that. Pikitia kia kue. xxxx
Without a doubt Bill - you are a very courageous man, I do not pity you, but will sit beside you through this and admire your spirit to shine through to help you and your family through this tough time. Our love, support and thoughts are with you all. We look forward to the REGULAR updates on this page!!
Post a Comment